Trevis's blog - a Yank’s Life With MS
A Voice of America
First, please allow me to say “thank you”. Thank you to the United Kingdom for the Magna Carta, Shakespeare, Dickens, The Beatles and The Royals … in no particular order. I wanted to get that taken care of, straight away.
I’m Trevis L. Gleason of Seattle, Washington USA. I have lived with multiple sclerosis since my diagnosis in 2001. Like many, my symptoms predate diagnosis by at least 15 years. Also, like many others living with MS, I’ve had to leave behind a rewarding and fulfilling career because of the affects of our shared disease.
Since 2005, I’ve been the nominal leader of a dedicated and growing community of people living with MS (people with MS themselves, family members, care partners – which I believe you refer to as “carers” – co-workers, researchers and medical types) by way of Everyday Health’s Life with MS Blog.
As much as those of us living with MS have in common, I’ve learned over the years that our experiences, symptoms, situations an even the countries in which we live make this a very individual disease. MS can and does so often cut us out of the flock and make us feel like we are alone and that no one understands nor could understand what we all have to cope with.
In fact, I think the greatest service our Life With MS Blog has afforded our readers is a chance to feel normal in our abnormalities. I couldn’t fathom a guess at how many times we’ve read comments the likes of, “I thought I was the only one!” or “Now I know I am not alone”. Maybe it’s part of the social aspect of the human condition to want to belong.
That, my friends, is why I am so excited to be a part of MS Society UK’s new social experiment. Many of our regular readers are from around the globe, but the vast majority is from North America. We want to hear about your experiences with MS just as we hope to share a bit of the American realities of this damnedable disease.
None of us has all of the answers but together we might just come up a few as well as some questions and, if this forum develops like Life With MS did, we may just shape the conversation.
I’ll be inviting our American community to jump into this conversation and I heartily welcome you to drop in on our site and join the lively discussion there!
There is much happening in the world of MS. Together, I believe we can help one another live to the fullest allowed by a disease which takes so much and leaves so very little. Together; that’s what we’ve found to work and we look forward to our regular conversations about living – living a life with MS.
Wishing you and your family the best of health.