MS Register

The MS Register is the world’s first register, for any condition, to combine information from you, about your MS, with clinical and NHS data.

The MS Register is forming an incredibly accurate picture that is already revolutionising our understanding of MS, inviting people to provide information on life with MS in the UK. We are using this vital information to fuel campaigns for fair, relevant policy and improved healthcare.

The Register aims to:

  • provide the most relevant information to researchers
  • provide an easier way to collect information from people with MS
  • build the evidence we need to campaign
  • build a clear picture of the true impact MS has on people’s lives

In the long-term, the MS Register could enable the development of new services that better meet the needs of people with MS. Through the Register, people with MS can be partners in their healthcare, providing the evidence we need to drive vital MS research and campaign for more support.

What can you do?

Your contribution to the MS Register is essential - with your help we could transform the development and delivery of research, care and services for people with MS. If you attend a clinic in one of our partner sites listed below, your online data can be combined with clinical data from your clinician and the NHS.   

England:

Queen’s Medical Centre, Nottingham
Queen Square, University College Hospital London
John Radcliffe Hospital, Oxford
Southampton General Hospital
Shrewsbury and Telford NHS Trust
Basildon and Thurrock University Hospital

Wales:

Morriston Hospital, Swansea

Northern Ireland:

Royal Victoria and City Hospital Belfast

How to register

Registering is very simple – go to www.ukmsregister.org and enter your email address and a password. Participants must live in the UK and be over 18. When you have logged on, you will find a series of questionnaires about you and your MS waiting to be completed. You will then receive a reminder email when it's time to log on and update your questionnaires. 

You can also contact the UK MS Register Team:

contact@ukmsregister.org

01792 606 354

More information 

The UK MS Register research project

News: MS Register secures funding to continue unique work

News: MS Register data gives insight into employment and depression levels

Read the latest MS research in Research Matters

Want to know our take on the latest research announcements? Read the research blog.

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