Hello everyone,
I was diagnosed with RR MS a couple of weeks ago so am knew on here!!
I initially only had numbness in my skin and l'hermittes sign on the 1st two relapses, which were a year apart, however since being diagnosed and in a matter of weeks i've lost my balance and had the previous symptoms occur again - has anyone else had these symptoms, will my balance ever come back?!! :-)
Suzie xx
Hi Suzie
I am 17 and was diagnosed with MS a few weeks ago as well. I also had numbness in the skin and loss of balance. Whem i originally had a loss of balance i was thinking the same. Once i had overcome the episode i got my balance back so dont worry. Luckily now i have been given the chance of a drug called CAMPATH. It reduces the episodes by about 80%. So why not speak to your neurologist to see if you are able to get them as long as you haven't been taking any other tablets for MS.
Good Luck
Jake x
Thanks Jake, this has def reassured me. They've given me some steroids so fingers crossed they'll calm it down a bit. I've not heard of CAMPATH - is this just used in your area? I'll google it! Thanks for getting in contact, will let you know how i get on with the steroids, can't wait to be able to walk in a straight line again! :-) How have you managed the diagnosis? Suzie xx
Hi,
just reading through your post and I can relate to it entirely. I was diagnosed with ms when I was 16 and the main symptom was poor ballance which eventually got so bad I couldnt walk at all but......
the treatments out there work wonders and touch the wood, I havnt relapsed in over 5 years and my walking is fine. My walking became so bad I was admitted to hospital where I had IV steroids and honestly, within 4 days.....I was on a trampoline at a family bbq.
Staying posotive is the key :)
Hope this has helped.
Ross x
Hi,
just reading through your post and I can relate to it entirely. I was diagnosed with ms when I was 16 and the main symptom was poor ballance which eventually got so bad I couldnt walk at all but......
the treatments out there work wonders and touch the wood, I havnt relapsed in over 5 years and my walking is fine. My walking became so bad I was admitted to hospital where I had IV steroids and honestly, within 4 days.....I was on a trampoline at a family bbq.
Staying posotive is the key :)
Hope this has helped.
Ross x
Hi Ross
Thanks for getting in contact
Wow no relapse for 5 years thats great, do you mind me asking which treatment your using? Hopefully i'll get my balance back in the next few days then with the steroids :-)
Your so right about keeping positive, works wonders!
Speak soon
Suzie :-)
It's ok :)
Ive been on a few different treatments to be fair, it's took time to find the right one. The ones ive been on in the past have been (in order):
avonex, mitoxantrone, copaxone and now i'm on rebif. Ive had steroids also inbetween. Have been told about the different options?
I hope the steroids work for you :) I'm sure they will!
Ross x
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