where to start? ill tell you my life story if you dont mind.
i dont know who to talk to.
in 2009 i was admitted into neuro ward with severe double vision, there for 2 weeks, mri/ct/daily bloods/xrays/lumbar puncture.
in the end i was discharged as "its a mystery" everything negative.
i had another relapse and following mri's they discovered the demylinated "stuff" but as my lumbar punture was negative for the protien bands etc they didnt consider ms.
this has continued 1-2 times each year.
following me loosing my temper (2011) after things not being explained and being told one thing by one doc then something else by another i got to see a senior consultant. after discussion it was revealed that my initial lumbar puncture was infact positive!!
im having another one soon as it was so long ago and i have to have a few more relapses before anything is diagnosed now.
i just feel so confused about it all.
looking back thinking about certain problems iv had i think perhaps it started sooner, perhaps 18-19, but then am i just linking things?
i have different symptoms now which i dont know if they are associated and just wondered if anyone would be happy to chat. i feel i need to speak to my gp to see if they are connected as they are getting worse, but he doesnt listen to me. when i had the double vision the first time he told me there was nothing wrong and to go home!! even though i could barely stand.
im just confused and dont know what to do.
Sorry for the rant, and so sorry if im being insensitive at all as I know iv not had it diagnosed and it may not even be it. sorry i just dont know who to talk to :(
