I'm un dx'd but seen in my notes possible MS and I think my neuro is thinking PPMS.
My question is do you ppmsers have good days and bad days and do you have symptoms that go away?
My symptoms, of which i have many, are there pretty much all the time, but for example, one day my arms will be quite painful, heavy and weak, but the next day they feel fine, only be weak again a few days later...
or I had pins & needles in my fingers for about 2 years but now thats gone altogether...
or my calves will feel very tight other days they wont...
or I've got a patch behind my shoulder that tingles and itches and drives me mad, but day to day or hour to hour even, the intensity of the tingles/itches vary greatly..
you get the picture?
One thing that never changes is my distance I can walk, no matter how I am feeling that day or which symtoms I have. After about 10 mins my legs become much weaker and i begin to struggle.
My legs have been getting progressivly worse over the last few years ( had symtoms for 4 and a half years) and their 'jumpiness' have become a lot more violent.
So I am curious to know from those with ppms how your symtoms affect you? do you have a set of symtoms that stay all the time (and progressively getting worse?) or do they wax and wain (obvioulsy not in the same way as RRMS)