Hi all, first post, (well i did start typing last night but the pc crashed after i typed loads).
my wife has been diagnosed with PPMS since oct 2011. since then there has been a continual deterioration in her mobilitiy. i suppose this is the progressive bit.
anyway, i was wondering, is it usual for your neurologist to say "i'm only going to review you every 12-18 months". and is it standard for your MS nurse to see you every 6-12 months? the physio team have discharged her. my feeling is 'there you go, now deal with it'.
so far i've found the majority of professionals involved very 'relaxed', i can't even say they're reactive let alone proactive.
its left me really confused and my wife very frustrated.