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Home » Forum home » Primary Progressive MS

MSIF day??? Hope..

Tags: Emotional support
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MSIF day??? Hope..
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hellMS
17 Jun 2012 at 10:16AM
Top

Hi folks

Has anyone else heard of -

multiple sclerosis international federation?  I'll make my excuses, I'm still on Greek time or I spend my time on the MS society website.

It gives me such hope that so many people are looking to help usthumbsuptrophy  There is hope...

skippysprite
17 Jun 2012 at 12:17PM
Top

Hi H

 

No, never heard of it, but as you say, the more the merrier.

Have a great day.

Pamhappyflower

Snow Leopard
17 Jun 2012 at 4:58PM
Top

Hi M and Pam, yeah I filled out a survey on fatigue for them a while back, and they published results on website which is here:

http://www.msif.org/en/

There certainly is hope... heart

Hope everyone having a good day. Went for lunch at Nando's then bought myself new baking tray... blimey... thumbsup tinnitus has gone through the ceiling with sheer excitement...

Pat x scared

hellMS
18 Jun 2012 at 8:42AM
Top

Thanks for that Pat, here I am again bright eyed and bushy tailedscaredevilLaughcan it last....toooooo much excitment lunch AND a new baking tray!! Calm down.

Hope is what we need, I fear it will be too late for some of us butheart

Have a good day everyonethumbsuptake care, M

Snow Leopard
18 Jun 2012 at 12:38PM
Top

Hi M.... well in truth it's not just the baking tray confused I've just sold large dining table and in process of buying small table and sofa... I've said this before on these boards but it just seems to be me... since MS I get so stupidly excited about things... more than excited, sort of obsessive. OK I know part of it is because my life is so tiny (a mouse would be too big to fit into my life) but it does also feel physical... like the way my tinnitus gets louder when it happens. Feels like my head will explode. Hard to explain but I'm convinced it's something to do with that 'emotionalism' or whatever it's called, caused by lesions!

Just had to rant a bit...

Anyhooooooo trying to calm down today as am now feelingsleepingand no wonder!

Have a good day M and all the gang,

Pat x tounge

 

skippysprite
18 Jun 2012 at 6:33PM
Top

Hi Pat

 

You are not alone, you would not believe how excited I can get over the most stupidest

little thing.  Sure I must have gone back to my childhood!

 

Keep smiling

Pamhappyflower

Snow Leopard
19 Jun 2012 at 12:39PM
Top

Pam I'm so pleased it's not just me! Yes is a bit like going back to childhood only with an old exhausted body... confused

Hope you're having a good day. Sunny in London!

Pat x butterfly

hellMS
20 Jun 2012 at 10:49AM
Top

Hi folks,

I enjoyed the high and now I am paying for it sleepingI have given it some thought and I wouldn't have it any other way!  I don't think your life is 'tiny' I love hearing from youthumbsupit's very reassuring seeing your posts.  Take care, Mhappyflower

Snow Leopard
20 Jun 2012 at 1:17PM
Top

Hya, it's true, make hay while the sun shines and then pay for it later... what the hell... otherwise we wouldn't ever do anything!!!

Thanks M... my life isn't too tiny when I've got mates like you. heart

Have a good one everyone... 

Pat x cool

hellMS
21 Jun 2012 at 9:18AM
Top

Dear Pat

In this together is what makes the difference.  heart

20 strokes today, before breakfast dust was gathering on the rowing machine.  You were toooooo polite to ask, thanks for that, because the Gods have to be smiling and the wind blowing in the right direction!!toungeTherefore no pressure just when I feel like it....

Take care, M

Snow Leopard
21 Jun 2012 at 3:43PM
Top

Hi M... wow 20 strokes! I am proud of you!!! trophy

Yep no pressure, do what you can... I'm gonna post a new exercise routine I have... tounge

Take it easy hon, hope you're doing ok,

Pat x 

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