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Home » Forum home » Primary Progressive MS

Eye problems?

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Eye problems?
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Tree65
24 Oct 2011 at 11:41AM
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Hi I haven't posted on here before just EL and ND but I have been dx with probable MS and probably PPMS too. A lot of RRMSers seem to suffer with ON and other eye related problems. Is that true of PPMSers too? I'm only asking as that is one symptom that I have not suffered from and just wondered if it was less likely in PPMS? Hope this isn't a dumb question!

Thanks all

Tree65

Snow Leopard
24 Oct 2011 at 1:24PM
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Hi Tree65 (my avatar would be perfect for your name!)... I have PPMS dx in 2008 and have never had ON. However, lots of people with PPMS do get ON, and like with RRMS it's often the first symptom. So, as with all MS, there is no rule. It's different for everyone.

I do have double-vision which varies by the day, but no sign that I have ever had ON (and fingers crossed that I don't). Some people with PPMS don't ever have eye problems, inc double-vision... others do. 

Not a dumb quesion at all. MS is so complicated I don't think anybody understands it fully!

Welcome to the PPMS board and feel free to ask any quesions at all. Remember, like with all types of MS, PPMS affects everyone differently. It's a case of getting to know your own MS. 

Take care,

Pat x

Tree65
24 Oct 2011 at 2:08PM
Top

Thanks Pat for this info! I am just hoping my eyesight will stay ok. After all everything else has gone to pot!
Tree65 xx
P.S. I agree about your avatar!

Byrony
25 Oct 2011 at 6:58PM
Top

Hi Tree65,

Very much agree with Pat, some with ppms get ON and others don't. I have read that it is a less common symptom of ppms however. I do occasionally get fuzzy vision that lasts about 10 minutes. This has always come when I have overdone things and I am tired. There is no such thing as a dumb question when it comes to ms, it is so complex and varies so much all questions are valid. Sometimes it is good when someone asks questions because the replies help lots of other people too. I hope you get a definate diagnosis and remember we are here to listen and to help.happy2

 

Take care,

Sarahx

Tree65
25 Oct 2011 at 7:13PM
Top

Thanks very much Sarah. My Neuro is pretty sure that I have PPMS but is sending me to an MS specialist in another hospital to be sure. I must admit that I am sick of waiting around and being poked and prodded, however I will be glad to be under the care of someone who is a specialist in their field!

I am hoping that it won't take too long to receive an appntmnt, but I won't hold my breath!

Tree65 xx

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