Please help. I'm scared :( | Multiple Sclerosis Society UK

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Please help. I'm scared :(

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Please help. I'm scared :(

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MrsTea

25 May 2012 at 11:50PM

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I've visited my GP and he told me the symptoms I were experiencing we're definately neurological. He wanted to do bloods before he refers me on though.

I'm so frightened. My father has Parkinson's and I have seen what that did to him. My symptoms seem to fit in more with ms though.

I've been really bad today. I've had pins and needles in my nose and lips all day. It comes only really quickly and scares me.

Im also getting lot of muscle jerking going on. Mostly it my legs, hands and some fingers but twice today it happened in my back. My whole back arched when it happened.

Struggling to write too. Have resorted to using a pencil as its easier to grip and doesn't need as much pressure applied.

I just wish I knew what was going to happen to me

rizzo

26 May 2012 at 12:58AM

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From my limited knowledge, I would agree with you that your symptoms don't sound very Parkinson's-like. (Have you looked at the Michael J Fox website - it's brilliant. Btw, my dad has PD too.)

Are they signs of MS? It's possible, but they could also be due to any number of other possibilities, including vitamin or mineral deficiencies (and therefore treatable!).

With any luck the blood tests will show something simple is behind it all, but if not, you will need to see a neurologist and get things properly investigated.

In the meantime, try and let go of the fear: the stress will do you no good and the unknown is often more scary than reality! For example, most people are terrified when they are first diagnosed with MS, but over time they learn to manage things and to live really quite normal lives - which can still be GOOD!

I hope you get some answers very soon.

Karen x

Finnberry

26 May 2012 at 6:18AM

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When I first went to the doctor, I thought I may have Parkinsons. My grandpa had it for as long as I knew him and I have quite a bad tremour in both arms and my movement has got worse. My doctor referred me to the neurologist after doing loads of blood tests. The neurologist was the one who picked up on the possible MS. Most of my symptoms are intermittent, so I was a bit confused. The neurologist ordered more blood tests. I know vitamin b12 was one of them and a friend told me that a simple deficiency in B12 can cause all kinds of nerve related symptoms. I still don't know whether it is MS but the neurologist is fairly sure it isn't Parkinsons. Having done some research, I think MS would be better than Parkinsons. Obviously full health would be even better!

Try not to worry too much. Most of the things we worry about never come to be anyway and then all that nervous energy was wasted. Whatever is causing your symptoms, it will be easier long term to know what it is. Even though there is no cure for some of these neuro-conditions, there are many ways of managing them and lots of support out there. Hang around here and shout when you need to. :)

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