I saw my Neuro yesterday & he says he has no answers for me. The tests I had 6 months ago were blood tests & they have shown low calcium levels and low Vitamin D. He suggested I get supplements from a Health shop, but no recommended levels.
He has now referred me to a Rheumatologist who specialises in ME/CFS to see if that may be the problem I have. I certainly have major fatigue, especially after physical activity, but I don't know if that would explain the pain (tight, gripping pain) in my legs and the inability to stand for long or walk for longer than 5 or 6 minutes.
The Neuro said he would see me in 8 months to see what the ME specialist says, but after that he won't see me anymore.
I just feel so 'lost' tonight. I suppose I had built myself up for some answers yesterday, but I have come away with even more questions! After nearly 5 years of problems, Limboland is getting me down a bit. I so hope the ME guy can help, otherwise I'll be literally left to deal with it all on my own. Feeling alone & scared as my life has changed so much. :cry:
Thanks for reading - I value everyone on here - for your advice and also for just 'being there'.