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Home » Forum home » New diagnosis and before diagnosis

How long do attacks last for?

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How long do attacks last for?
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pinkie
05 Jul 2012 at 5:43PM
Top

Hi again!

This is my first attack and so far as I said in my earlier post Ive been semi-diagnosed so far with MRI scan.

My question is does this go away for a period of time and you return to "normal"?  My leg has been heavy/tight/tingling etc for just coming up to 3 months now, Ive taken the steroids and althought they have taken the edge of it my leg is still very much a lead weight and I cant wear proper shoes as my toes feel crampy all the time.  I cant ever imagine getting my leg back but I want to so very much!  Ive been feeling really down again today the tingling is a constant reminder I have this thing in me, even if it came back just to get some respite for a time would be so welcome.

Thanks

Jay x

pinkie
06 Jul 2012 at 1:09PM
Top

Can anyone give me an reasurrance/advice on this please?

Thanks ;)

X

babylove
06 Jul 2012 at 1:21PM
Top

I think it can be months.

With me the longest time it has taken to recover (although not fully) was about 5 months. I have read that lesions on your spine can take anywhere up to 2 years to recover to the fullest.

I know steroids don't actually help symptoms, it is just meant to help speed up the recovery time.

I am sorry to add that after an attack I had last June my leg has never gotten better and still buzzes everytime I try to walk so you may not get rid of this im afraid. There are meds to help with nerve pain and I have recently started them myself for pain and burning.

Lindsay x

amy
06 Jul 2012 at 3:06PM
Top

Hi. I thought recovery time was linked to severity of attack, but then I had a milder one that seems to have stuck around and not got any better. I know how you feel, its just horrible for something to just seem to be neverending. Please don't despair, my first attack was so severe took 18 months to recover, by which point I was convinced I was stuck with it but then went away almost entirely! Think one of the hardest things is how much it varys from person to person, and even from one attack to the next. The only thing we can do is take each day, stay positive about the future, don't beat yourself up if it gets u down (your entitled) and remember tomorrow is another day. I bet u do recover, 3 months may seem like an age, but its such a sensitive area it really does need much longer than a normal wound to heal. Take care.x

midnightmoon
06 Jul 2012 at 3:28PM
Top

Does it make a difference where the lesion/demyelnation occurs as to how long recovery (if at all) takes?

I had, what I would deem as, a bad first attack in mid March. I recovered well within about 8 weeks to what I would consider to be about 905 recovered but the remaining symtoms have stuck around still. I stil have slight numbness in left side finertips and toes, some weakness/stiffness in left leg and some days I really feel just really tired. Other days I feel great and do as much as I can while it lasts. On the 'not so good' days I seem to actually regress back to about 75% recovered again :/

I am getting a little concerned that it has been a,most 4 months now and no progress on that 90% recovery but I know it can take much longer than 3/4 months to recover in some circumstances.

I don't know why though, hence me wondering if it has anything to do with where the lesions are in the brain as oppsoed to severity of symptoms...

 

babylove
06 Jul 2012 at 3:57PM
Top

midnightmoon, I definately read somewhere that "it can take up to 2 years to recover from a relapse especially if it is transverse myelitis (spinal lesion)"

 

I think this is because the signals in your brain can re-route whereas the ones going down your spine do not have much space to get around. Does that make sence. So if it is a spinal lesion you have to wait for it to heal as much as it is going to but in your brain the signals find another route while the healing is under way. NOW this is what I think so if someone wants to tell me I am completely wrong feel free blush

Lindsay

pinkie
06 Jul 2012 at 4:40PM
Top

Thank you all so much for taking the time to reply it means so much at the moment knowing Im not on my own with this!  At least I feel a lot better even knowing it could be 18m rather than forever! But I am aware there are no hard and fast rules with this and every person every attack its different,

Lindsay thats an interesting fact you pointed out there, and I did have more lesions on my spine than I did in my brain so that makes sense to me.

Jaycee x

babylove
06 Jul 2012 at 4:46PM
Top

Rizzo (Karen) has a brilliant way of explaining spinal lesions and the severity of them. At the begining I was told by my GP that my MRI was great and only showed a lesion on my spine. I was quickly told by Rizzo and many others that she was completely out of order and that spinal lesions can cause the most symptoms and diability letdown

 

I think she has the explaination copied onto her PC so hopfully if she reads this she will paste it on here for you.

 

Lindsay x

babylove
06 Jul 2012 at 5:13PM
Top

Just had a look at an old post of mine and found Rizzo's reply on there. Here is the link, have a look thumbsup

 

http://www.mssociety.org.uk/node/629558

Gokr
06 Jul 2012 at 6:11PM
Top

Spinal lesions tend to have the most recovery 3-6 months after onset but can continue to recover for upto 2 years. My MRI spine was normal and I had a few non-specific subcortical lesions. Regardless neuro thinks I've had a ?episode of spinal inflammation. My pins and needles went within a few months of onset but I've been left with a lot of pain and I still have intermittent bladder and bowel issues. To top it off I think I also had two new flare ups (hug and ?TN) and now have a dratted chest infection and the pain is horrendous. I guess what I'm trying to say is these things aren't set in stone. Each person is different and obviosuly any illnesses along the way may make things feel a little worse and of course there's always the dreaded new epsiode of symptoms.

It's hard not knowing whether you're going to be back to normal. I guess I've told myself that this is how my body is from now on so any improvement is a bonus.

Reemz

X

rizzo
06 Jul 2012 at 6:27PM
Top

Glad you found it Lindsay because I don't have that one hard copied. Actually, I make it all up every time I do one of those kinds of answers! (Note to self - be better organised!)

In response to the original question: a relapse can last anything from a day to many months. There doesn't seem to be any rhyme or reason to what recovers and what doesn't between different people or even different relapses for the same person, but there are probably three main factors (that I can think of right now at least): how good their natural repair mechanisms are, how stretched their repair mechanisms are (the longer MS goes on, the more damage and the harder it becomes to carry out effective repairs) and how easy it is to re-route around the damage (that's why spinal lesions can be harder to recover from).

I vaguely remember reading that the average duration of a relapse is 6 weeks, but mine tend to last 3-4 months on average; the shortest has been a day, the longest a year+ (but that may have been back to back shorter ones).

Just about the only consistent thing about MS is that it is completely unpredictable :-(

Karen x

pinkie
06 Jul 2012 at 8:06PM
Top

Thanks again for taking the time to reply, I have felt a little easier in my symptoms today, perhaps keeping a diary would be a good idea as you forget where the stiffness started, where it gets worse etc, but then why would I want to remember nervous

 

Jay x

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