I have been watching and reading for a while, and am terrified by how many people are undiagnosed and then just left to get on with things. So, I have decided to ask for your opinion. I am due to see a neurologist next week. I saw one neurologist last year after a bout of clumsiness, poor balance, weakness on right side, and urine retention. It all started with tingling and then a loss of sensation in my right toes. The neurologist said I had brisk reflexes on the right side.I had a brain and neck MRI which was clear so I wasn't followed up. My GP has asked for a second opinion as he feels that something is definitely wrong as six months later, I have been left with some weakness, particularly in my leg. I try to exercise but can only manage a few minutes and then get drop foot and my leg goes all weird. I can't feel it or lift it properly for a while. If I try and lift it it goes all jerky. This improves after some time. I nearly always get drop foot in the evening along with stiff lower legs which worsen as the day goes on, and get much worse following a shower.
Sorry for the ramble, but having read all the posts recently, I'm not sure I can face the appointment with the new neurologist. I already feel like I must be crazy, and the thought of seeing someone else fills me with absolute terror. I am not getting worse, infact most things have improved, although not completely resolved. I already know there is nothing life threatening as my previous MRI was clear, so I think it won't do any harm to just cancel the appointment and wait and see for a while longer if things continue to improve. I don't want to offend my GP by cancelling the appointment as he has been an absolute gem and I feel like he has really stuck his neck out for me, (although I did not ask for a second opinion)
Again, sorry for such a long post, but after being quite relaxed about everything, I suddenly feel stricken with fear, and it's all linked to seeing the consultant. If I do cancel the appointment, what do I tell my GP, also if I don't cancel, could I just postpone for a few months?
Thankyou for reading this.