Ok so Ive started my own little self treatment plan whilst I way to see the neuro as Ive been having a horrible relapse for the last month and dont see neuro till April 30th.
What Vitamins and supplements do you take? And how has it affected your MS symptoms?
Ive just started taking:
Vitamin D (With Calcium and Folic Acid in - from Midwife cause Ive just had baby)
Vitamin B12 Complex
Omega 3, 6, 9
Plus I got some Baclofen from Dr.
Hi I take a few vitamins and supplements, I take ; 1000mg Codliver oil capsule
100mg Co Q10
25mcg Vit D3
1000mg Calcium
500mg Magnesium
300mg Chlorella
I've just started taking Co Q10 after reading about how it is used by the brain cells, to keep them healthy and keeps us more alert. I feel well, but I don't have relapses I'm PPMS. Hope you soon start to feel better.
Lynne xx
Yeah I read about that too... I want to get some Magnesium... Also something called Lecithin is supposed to be good too!
I take Marine Fish Oil, Multivitimins, Ginko Biloba and Calcichew D3
I take Vit D (5000iu)
Omega 3 fish oils
Vit B12 injections (every 3 months)
I take 5000iu of Vitamin D3 every day and 600mg of Alpha Lipoic Acid as well. I ran out of alpha lipoic a few weeks ago and stopped taking it and I noticed my pins and needles was much worse, went back on it and seems to have made a difference.
Meant to say, I take Vit D in Bio D Mulsion which is meant to be better absorbed by the body.
Hi,
I take:
- Colostrum breakfast drink (from Colostrum4health) with a tiny amount of Chlorella & Spirulina stirred in.
- Probiotic
- Tiny amount of Royal Jelly
- Aloe Vera Capsules (from Desert Harvest for Interstitial Cystitis)
- Aloe Vera + Calcium & Vitamin D3 (from Desert Harvest)
- 1x cod liver oil capsule
- 1 x Efalex fish oil capsule
- 1 x Nordic Naturals ProDHA soft gel fish oil (from Desert Harvest)
These are spread out throughout the day.
Heather
The Lipoic Acid sounds good! Looked it up says it may help protect brain and nerve tissue... I may get some and add it to my list...
hcd... Colostrum drink sounds interesting...
I tried Cod Liver Oil capsules for a while, but I didn't like burping up the horrible taste all day. I also tried garlic capsules, they are supposed to have no anti-social after effects. Not for me, phew! I just take a multivitamin once a day.
Do you find the baclofen makes you tired?
Bill.
More things to add to my shopping list - thanks.
I take calcium with Vit D
folic acid (not preg but low in it)
Vit D
fish oil
multi vitamins
I have a daily pill box which is full... means I only have to count everything out on a Sunday.
keep well, Jen xx
Ah yes, the Sunday pill box routine, I know it well.
At the moment I just take folic acid and vitamin D.
I have experimented with mega doses of b12, multivitamins, cod liver oil, omega 3 fish oil, evening primrose. They didn't seem to make any difference. I also took calcium with D when I was taking steroids- to protect my bones.
The folic acid is the only one that seemed to help- after taking it a couple of weeks I noticed an improvement in fatigue. Might be a coincidence, as I was tested and wasn't deficient, but I have been assured it can't harm me, if I don't need it I'll wee it out!
@ Bill... I seem to be getting on ok so far with the baclofen... but im only at 20mg a daytrying to see what difference a minimal dose will make. No real tiredness...
Am taking Vitamin D3 (NICE guidelines suggest massive doses but only take up to 5000units when no sun)
Omega 3/6/9 suplements (but only when not had fish)
Vitamin B suplements
Glucosamine
Fish oils - hate oily fish
Vitamin d -not enough sun and can't get enough from diet
Magnesium - fabulous sorted out my stiff legs
Probiotics - don't take but going to start - put on shopping list
Min xx
I take 2000iu Vit D3
magnesium sulphate for spasms
Vit B2 (niacin) as a migraine preventative
and eat salmon every Friday for dinner and tuna 3 times a week for lunch for my Omega 3 & 6. Can't stand the capsules and burping fishy burps 
Belinda
Seems the sunday pill box routine is common then.
I take = Vitamin D3 - 10,000 IU (Health Origins)
Omega Oils 3, 6 and 9 - (Boots
Berocca efervecent multi vitamin and mineral
Boots A - Z mult vitamin
Vitamin A -10,000 IU (Now Foods), - I take this for dry skin but it is made from Fish oils so cant' be bad.
I really don't know of taking these makes a difference but at least it is something I can do and gives me an element of control. Was anyone ever told what they should be taking. This lot is just guess work but Alpha Lipoic Acid looks interesting. I well seek that out and give it a go too. Why are we not given this stuff on prescription? We are spending a fortune. I asked my GP about vitamin D suplements a few year ago and they only prescibe that if you have a deficiency.
Rona
Interesting to see a few trying the alpha lipoic acid.
I'm one of them.
I take:
Alpha liopic acid + acetyl-L-carnitine (combined pill)
Vitamin D
Cod liver & evening primrose oil, mixed (combined pill)
Vitamin B complex
Calcium & Magnesium "bone care" pills
Skin & hair capsules (nothing to do with MS, but does contain additional amounts of some of the other stuff already noted - e.g. the oils & vitamin D).
I've occasionally taken Gingko and CQ10, but couldn't notice any benefit from either of those (not that I'd swear there is from any of the others), so I didn't persevere with them long term.
Apart from the Vitamin D, I sometimes wonder if I'm wasting my money. But as I've been doing quite well, and not had a relapse in some time, I'm reluctant to change anything, in case something in my cocktail is doing the trick. It does get pricey taking all this stuff, all the time, though.
Tina
The only thing I take is echinachea when I have a cold, I bought some vitamin D tablets but decided I take enough pills without them! so they're still sitting on the shelf :) and am making the most of the news that blue top milk is a source of vit D lol
Hope it works for you though.
Mel xx
The only thing I take is echinachea when I have a cold, I bought some vitamin D tablets but decided I take enough pills without them! so they're still sitting on the shelf :) and am making the most of the news that blue top milk is a source of vit D lol
Hope it works for you though.
Mel xx
I have heard that echinacea is contraindicated with MS because it works by boosting the immune sytem and our immune sytems are in overdrive ayway.
And if you are on any of the DMDs, echinacea is possibly a no no as it may interfere with the immune altering properites of the drugs.
I'd double check with your Dr before continuing with it.
http://www.mstrust.org.uk/atoz/echinacea.jsp
Belinda
I take:
Multivitamin with Probiotics
Super Strength Vitamin D3 (5000 iu)
Vitamin B12 (1000 mcg)
The only thing I take is echinachea when I have a cold, I bought some vitamin D tablets but decided I take enough pills without them! so they're still sitting on the shelf :) and am making the most of the news that blue top milk is a source of vit D lol
Hope it works for you though.
Mel xx
I have heard that echinacea is contraindicated with MS because it works by boosting the immune sytem and our immune sytems are in overdrive ayway.
And if you are on any of the DMDs, echinacea is possibly a no no as it may interfere with the immune altering properites of the drugs.
I'd double check with your Dr before continuing with it.
http://www.mstrust.org.uk/atoz/echinacea.jsp
Belinda
Snap re the echinacea!
I'd never thought about the possibility of it interfering with DMDs, but I'm not on them anyway.
But since diagnosis, I've always avoided echinacea, or anything reputedly "immune boosting". I don't know if the claims made for such supplements are even true. But I don't think I want my immune system to be any more fired-up than it already is, so I don't take the chance. Ginseng is another one I won't take (distinct from gingko, which may be of some benefit, and I don't think is an immune booster).
Tina
Bought the magnesium - another one in the Sunday pill box... will need bigger compartments!!
Jen x
I don't think you need to worry too much about 'immune boosters' and DMDs- I asked about the evening primrose oil which had that on the packet, as I take azathioprine to suppress my immune system- the pharmacist said any effect from the supplement will be small and not enough to cancel the therapeutic effect of the drug.
I take (a day):
D3: 5000iu alternating with 10,000iu (my levels were still a bit low on only 5000iu)
B12: 100mcg (no idea why really; seemed sensible given that it supports cell repair?!)
Omega 3: 2000mg
Calcium (with boron and magnesium I think?): 2000mg (I'm prone to low calcium levels and there is osteoporosis in the family)
B2: 400mg (migraine preventative - and it's working! YAY!!!)
Karen x
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