As I said in my previous post, I was put in the WRAG group for ESA. I intend to appeal this decision as I cannot believe I can be expected to work when I never leave the house alone (because of crippling fatigue, feeling vulnerable because of lack of balance, and because I cannot walk any distance without stopping for a rest) and I suffer from fatigue and pain/numbness which makes me feel ill and overwhelmed when I attempt the smallest task - taking a basket of washing upstairs yesterday left me having to lie on the bed to recover for half an hour, for instance. I feel like death for the first hour and a half of the day before my painkillers kick in. If I get stressed the 'hug' rears its ugly head leaving me breathless and distressed. I suffer with bowel and bladder urgency which is another thing which limits my going out, but I rarely have an 'accident' as I'm always near the loo at home. This wouldn't necessarily be the case in a work situation of course. I was granted ill-health retirement from my job and the doctors involved agreed I would not be able to work in any job and my condition would not improve.
HOWEVER, none of these symptoms appear to fit the descriptors for the support group (descriptors here - http://www.tameside.gov.uk/esa/lcwra). There is nothing to take into account fatigue or numbness, or the effect of stress on symptoms. The mobility question asks if you can travel a set distance 'with or without' a manual wheelchair - I do not used one but maybe could mobilise that far with one, so I could fail to meet that descriptor for that reason.There is no question addressing the need to sleep or lie down during the day. There is a bowel and bladder question, but if you manage to get to a toilet on time at home, it doesn't consider that this might not be the case in a work environment or while travelling to work. The system is blatantly discriminating against those with MS and similar conditions as none of the descriptors are relevant to many of our main, disabling symptoms.
Can I ask, those of you who were put in the support group, what descriptors did you meet?