Hi,
My wife was recently diagnosed with MS, (not sure which type as still awaiting results came out of hospital on 10th May after ten days). She is in a pretty bad way I do everything for her washing cooking (well try to lol) as well as working long hours. We have two kids one of 14 and one of 19 the older one is great and helps all the time. Since I brought my wife home we have been on our own without any contact whatsoever from the MS nurses, we have contacted them on so many occasions and been told we are still waiting for a referal letter? My wife has fallen on numerous occasions and apparently has now been put on a list as a priority! Since I have been home I have installed hand rails brought her a wheelchair (so expensive) and adapted the bathroom best I can, must admit I am struggling a bit with money etc. as I cant put in the overtime I used to due to trying to spend as much time at home as I can with my wife. With the kids at school and college she is on her own a fair bit which I am finding increasingly hard to deal with as I am worrying sick at work. The first week home family and firends were around almost 24/7 almost acting like someone had died now a month or so later we don't see anyone, my parents visited the other day and she was having a really good day up and about (on sticks) laughing and acting her old self, they looked at me as if I had been making up how bad she had been. Neigbours also give us funny looks when I take her out in the wheelchair as if to say "well I saw her standing up fine the other day" I don't think there is anything out there that really can prepare you for the ups and downs you go through when living with someone who has MS. Just having a rant and wanted to find out how other peoples family have acted since being diagnosed.
Regards
Londshanks
