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Parents of Children and Teens with MS

Session 3: 11:00-12:00, Saturday 29th March 2008

This workshop was for parents of children with MS only.

The aims of this workshop were:
  • To explore difficult issues related to MS through discussion and question-and-answer session with an expert, offering support and information
  • To offer support and information to people affected by MS through group discussion facilitated by experts.
  • To provide a networking opportunity for the participants to meet others in a similar situation.
  • To raise awareness of MS in childhood.
  • To find out what kind of support/services the MS Society could be providing for young people with MS and their families.

The facilitators for this session were Dr Brenda Banwell - Director, Paediatric Multiple Sclerosis Clinic, The Hospital for Sick Children, University of Toronto, Canada and Dr Anita Rose - Highly Specialist Clinical Psychologist with the MS Team at the Walton Centre of Neurology and Neurosurgery, Liverpool.

Dr Banwell and Dr Rose facilitated a group discussion of issues surrounding childhood MS. How does MS affect family life? What’s available for families with MS in terms of health services and social services? What should be available? How do people cope with having a child with a health condition? This session was an open forum, a space for parents to share their experiences. Individuals were encouraged to do this, and to swap their contact details, if desired, with people they met at this session. There was limited time after the session to ask the experts questions, and an opportunity to continue discussions in an informal focus-group setting in the refreshment area in the Exchange Hall after the workshop.

For more information on the workshop, email Chloe George.

 
My Say Booking Form
To reserve your place at the workshop, please download the booking form, complete it and return it to the address given on the form.