What is primary progressive MS?
As with the diagnosis of any form of multiple sclerosis (MS), it can be a shock to be told you have primary progressive MS. Whether your symptoms are obvious or barely visible to others, your condition has been given a label which opens up questions as well as providing answers.
You might want to find out everything you can straight away, or you might feel like taking it slowly. There’s no ‘right way’ to react, but knowing a little about your type of MS and what it might bring can be helpful for planning ahead, managing the symptoms and adapting to changes over the years.
»
Why is it called primary progressive MS?
- What symptoms can it cause?
- Why are problems with the legs so common in this type of MS?
- Cognitive problems
- Is it really the same condition as other types of MS?
»
Diagnosing primary progressive MS
- What are they looking for?
- What tests are used?
- Is a lumbar puncture still necessary?
- The difficulty of interpreting MRI scans
»
Managing primary progressive MS
- What help is available?
- What treatments are available?
- Wellbeing
- Rehabilitation
- Steroids
- Drugs to slow the progression
