Support for people severely affected by MS
This section addresses concerns of people severely affected by MS. It looks at health and social care services which are available, considers advance statements and end-of-life planning, and examines the role of palliative care.
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Introduction to severe MS
- What is severe MS?
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Symptoms of severe MS
- What types of symptoms experienced by people severely affected by MS?
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Managing complex symptoms of severe MS
- Who coordinates complex symptom management?
- Pain and severe MS
- Pressure sores and severe MS
- Spasticity, muscle cramps and spasms, and severe MS
- Cognitive problems – memory and thinking and severe MS
- Mood, depression and emotions and severe MS
- Swallowing and severe MS
- Constipation and nausea and severe MS
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Maintaining quality of life
- Quality of life of people severely affected by MS
- Carers' quality of life
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Planning care for the future
- The Mental Capacity Act 2005
- Lasting Power of Attorney (LPA)
- What if I have no one to act for me?
- The Court of Protection
- The Public Guardian
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Advance directives, decisions, statements and living wills
- What are advance directives, decisions, statements and living wills?
- Advance directives
- What needs to be included in advance directives?
- Who can draw up an advance directive?
- Advance statement
- Assisted dying
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What particular decisions may require advance directives or statements?
- Artificial feeding
- Artificial ventilation
- Cardiopulmonary resuscitation – CPR
- Case study of a person wtih very advanced MS
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Practical help and support
- Care when living at home
- Health care services
- Social care
- Financial support
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Palliative care
- What is palliative care?
- Does palliative care help people with severe MS?
- Is palliative care available to people severely affected by MS?
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Respite and residential care for people severly affected by MS
- Respite care
- Long-term residential care
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End-of-life care
- Planning end-of-life care
